In March, Lauren started having “seizure like” episodes during the night. As many as 15 to 20 were occurring every night. She continued to get weaker and weaker until she eventually lost the ability to walk. It progressed to the point that she couldn’t even hold her own head up. She was admitted to the hospital and they ran test after test on her and could not figure out what was going on with her. The tests did reveal that the episodes were not seizures. She was placed on IV antibiotics and a couple weeks later, she had a surgery to remove fluid build up in her ear. Our prayer’s were answered and she stopped having the episodes at night and started walking again. She has not only regained all the skills she has lost, but she has surpassed her previous levels in all areas except speech. Lauren is able to sit at a table and feed herself for the first time independently. We used to worry that she was going to throw her food or plate. She isn’t doing that anymore. When we put her in bed now, she stays there and puts herself to sleep. We use to have to stay in the room until she fell asleep. We hardly ever have to change a soiled diaper anymore!!!
Lauren walking on the treadmill tonight before bed (10 minutes on speed 1.5 inclined at 2.5) - you go girl. Normally, she does 15 minutes per day.Unfortunately, Lauren lost the ability to talk and sing within the past year. Over the last few weeks, she has started saying a few words and singing a line or two of some of her favorite songs. Singing her songs brought her and all of us so much joy as we loved listening to her. We have been so blessed since Lauren’s transplant having such a happy, healthy little girl. This experience has been a good reminder for us and how thankful we need to be for every year we have Lauren. God has blessed us so much with this extra special little girl. She has this amazing spirit that is infectious. At least 90% of the time, Lauren has a beautiful smile on her face and you can’t look at her smile and not help feeling a little better.
It is just amazing to see how calm and content she is now. We can take her to a restaurant and she will sit with us in the booth and eat her food. We take her to movies and she makes it through the whole movie, giggling occasionally. We are just so thankful for how well she is doing.
One of my favorite recent pics...
4 comments:
That last picture is so sweet!
Really glad you'll be keeping us updated.
She is so beautiful. A great picture.
She is such a beautiful blessing and testimony to you and others! God knew what He was doing when He gave her to you two.
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